September 15, 2019
Desperate plea for mixed race donor to save life of boy, 7, with rare disease  – Daily News

Desperate plea for mixed race donor to save life of boy, 7, with rare disease – Daily News


 A seven-year-old boy is making a desperate plea to find a mixed race donor match for a life-saving bone marrow transplant  Asaya Bullock was born with a rare autoimmune disease, IPEX syndrome, which can be life-threatening in early childhood  The only cure is thought to be a bone marrow transplant from a matching donor – and although Asaya has been on the registry for most of his life, he hasn’t yet found a match   Asaya’s dad is African-American and his mum is Caribbean, but the registry is not representative of his ethnicity, ABC News reports  He and his family, from new York, are on a time sensitive search for a match.     Asaya’s mum Asaya Bullock told Good Morning America: “It’s like a miracle that Asaya is still alive because the doctors only gave him two years to live  “He was sick a lot and as [his] parents, we didn’t know what was wrong with him ”  Little Asaya ha suffered from body aches and pains, memory loss, and stomach issues   He is in school but gets tired quickly because of his immune system.    The Be The Match website says: “If you could offer hope to someone dying from cancer, would you?  “Joining the Be The Match Registry means volunteering to be listed as a potential blood stem cell donor, ready to save the life of any patient in need of a transplant  You could be someone’s cure. You could literally save a life.”

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