December 13, 2019
Coping with a Type 1 Diabetes Diagnosis

Coping with a Type 1 Diabetes Diagnosis

♪♪>>It was really scary to just to be there
and know that I have diabetes, and you can’t get rid of it.>>What does this mean? Can I still play soccer?
What do I have to do on the daily, and like how does this really do anything to my life,
like what does this effect?>>I remember when I was in the hospital and
you were in the hallway crying and talking to like everybody, calling everyone. And I
said, “Mom, can I have something to eat, I’m really, really hungry,” and she said,
“You can’t eat anything right now.” ♪♪>>I was diagnosed with Type 1
diabetes when I was 4 years old.>>I picked her up at preschool and her preschool
teacher said to me, “You know, Taylor had three glasses of lemonade for snack today, and she
went to the water fountain five times.” And she was only in preschool
for two hours a day. So, it was a lot.>>We were at a soccer tournament, and I really
was watching how much he was running off to go to the bathroom.>>He was peeing more often at nights, especially.
We would go through maybe a diaper per hour. He also had an insatiable appetite for liquids. ♪♪>>To learn that she had to have injections
for everything, there’s no words to describe what that feels like as a parent.>>I think it really hit me when I came out
of the pharmacy and I took the biggest bag out of the pharmacy with like three months
worth of supplies, and it really hit me at that point like: This is something that we
really gonna have to deal with for the rest of our lives.>>You’re at a point in the beginning where
there’s so much information being thrown at you, you’re thinking how am I
ever going to do this?>>From my point of view, the
first thing to do is to breathe.>>Perfection is not the goal, and I remember
the folks at CHOP telling us that early on is that perfection is not the goal. There
are gonna be highs, there’s gonna be lows, there are gonna be mistakes.>>When you leave CHOP, you leave with a plethora
of information. And it seems like there’s — the world is on your shoulder and that you
have to get it, you have to know what you’re doing to be able to care for your child. But
you have directives, you have a care plan, you have the main number, you have the emergency
number, you have the social worker’s number. All of those supports are put into place so
you’re — you’re really not by yourself.>>I’d say it’s almost like coming home with
a newborn; you don’t know what you’re doing at first and then all of a sudden you start
to realize like, you know what to take with you when you’re leaving the house, you know
what certain foods are gonna do to his blood sugars. But it is going to take some time,
I would say probably that month to two months is when we felt like, OK, we can do this.>>It just gets better, it gets better. It
gets — it gets, I promise you, it gets better.>>We just created our routine: who checks
blood sugars, who does shots, where do we do it, how do we hold him, how do we — whatever is that makes you more
comfortable, and the moment you find something that works, stick to it.>>It just becomes life. You know, they would
say, oh you’re gonna know the carb count, you’re gonna know what this means, you’re
gonna — and it’s true, which is great. Everything is fine.>>Our decision of where she went to school
was: Is there a school nurse there full time.>>The continuous glucose monitor, which is
attached to her and it monitors — and it sends the data to the phone and mommy and
daddy can look at her at school. Last night she had an overnight with her girlfriend and
our anxiety level was negated almost completely.>>I had my phone right next to the be so
I could see what her blood sugar was at her friend’s house on the other side of town.>>it’s really been a game
changer for diabetes for her.>>He knows that testing his blood sugar is important,
and we just try to make him actively engaged in the decision-making process.>>We try to put a spin on everything, like
a positive spin on everything. Like when he first got his sensor, you know, he’s
really into super heroes, so that was a super hero pack that we get to put
on his arm. Little things like that.>>What caused the greatest anxiety was: Am
I going to be able to continue to be as active; to play sports, to play soccer? And the folks
at CHOP were great. I mean from day 1 constantly reminding us and reinforcing to him that
he was going to be able to do all the same things he was doing prior to the diagnosis.>>If you really would like to continue with
your sport, like continue with your sport; it shouldn’t hold you back, just follow what
you wanna do and just watch as you go.>>There’s no limitation. It’s just because
Madhi has diabetes, what does that mean? It just means, you, you know, you
do the normal things that a normal person should do, you take care of yourself, you
take care of yourself. That’s it.>>From what I’ve learned now myself having
it for 34 years and have a full active life, done many things, is that you’ll be OK.>>Reid’s a ball of energy. He’s either
riding his bike or riding a scooter. He loves golf, mini golfing all the time, plays
soccer, plays basketball, plays baseball.>>Diabetes is kind of like become like a
regular part of my life.>>You’ll be a pro at it and you
don’t even care anymore. ♪♪>>I’m planning on going to West Chester University
to major in music education, and I’m gonna be a part of the marching band up there, and
I just can’t wait to be a music teacher.>>She has her whole future ahead of her.
She has her diabetes under control, she knows what she’s doing, and when Taylor
wants to do something, she does it.>>She’s a charmer, she’s just – she’s gonna
have a great life, and she is determined to not let diabetes stop her from doing anything.>>I think like any 15 year old, he sees himself
as a professional athlete. If he doesn’t end up being a professional soccer player, I really
think this whole experience has shaped his view on what he might wanna do when he
grows up. I think he wants to help people.>>Diabetes just isn’t gonna hold me back
with anything; I won’t let it hold me back.>>It’s just part of my life. I don’t really change
much. I don’t really worry that it’s there, I don’t even care that I have it; it’s just
another thing. Now I just have to watch what I do, watch what I eat. I don’t have to change
anything, like I’m still me.>>You can still do whatever you wanna do,
like play music, be a lawyer, like be a cop, become the President.>>The diabetes is just something that he
has to deal with. It is what it is and we’re gonna manage it, but that’s not gonna limit
him in any way, shape or form. He’s already great, and we’re just gonna keep him on that
path of greatness regardless. So hopefully you’ll be seeing President Jace someday.

55 thoughts on “Coping with a Type 1 Diabetes Diagnosis

  1. I have type one and I thought I was alone until I say this because people make fun of me for this and it makes me depressed and now Ive seen this and I feel so much better 🙂

  2. I just gotten diagnosed a few months ago and it was so scary,i just remembered when i was really hungry and couldnt eat anything i had to suck on mint swabs 🙁 but im glad i can cope with it

  3. It was hard coping for me we still have rough day wear I just cry wishing everything to go back to normal but this is my new normal I was diagnosed at age 10 and now I am 12

  4. i was just recently i was diagnose with type 1 diabetes it's hard for me different i'm glad i saw so i know i'm not alone.

  5. I'm 11 I was diagnosed with type one diabetes last year and I was in the hospital for almost a week so honestly this video makes me really happy I recently got a insulin pump and a constant glucose monitor, it's great it's great to know that other people out there are dealing with the same thing, out of EVERYONE in my school I am the only person with type one juvenile diabetes. Also if anyone reading this isn't diabetic I just want to say if anyone you know has diabetes I just wanna say low blood sugar makes me personally feel like CRAP my ears ring my head hurts I get dizzy so if someone's glucose is low its probably good to just let them do their thing and not bother them/try to talk/try to play with them. Amazing video!


    Would love for you to check out my vids…trying to spread T1 awareness. Want to help and interact with others!!

  7. Guys just remember if you have type 1 diabetes your not disabled or anything your a normal human being the only difference is that your pancreas is damaged and than can only be fix by insulin shots my brother has it and he’s not affected and ashamed so you Guys should not be either

  8. I'm a kid and I have type one diabetes. I've had or for almost 4 years now. I use the diabetic pump but i do abmit it's still stressful besides all the other things I have. I'm a girl and when going through puberty makes it even worst so its stressful. Allot of people think it involves eating too much sugar but really it's mostly a genetic disease. I was diagnosed at age 7.

  9. I have diabetes I got diagnosed with it a couple of months ago and I have a low self esteem with telling people that I have it and I never show my sensior and most of my friends don’t know that I have it

  10. We just got discharged from the hospital. My niece suffered from Diabetic Ketoacidosis. It was scary. Her parents are not here so I'm the one who took care of her. It's such a hard thing to look at a child injecting insulin after meals and monitor blood glucose 5x a day. This video gave me some sort of peace of mind that she can still have a normal life and enjoy her childhood. Thank you.

  11. I throught i was alone i am 13 y.o😥😭 i really hate my sick i cant ever enjoy the food on my birthday😢😢😭😭😭

  12. I am a T1 diabetic and i am also the first diabetic Professional Boxer in the UK, subscribe to my channel and see for yourself on how i face challenges throughout my career as a diabetic boxer

  13. hi ,im from india . i got diagnosed when i was 16, Now im 22 .And i have hypoglycemia too. this diabetes ruined my life 🙁

  14. Thank you for making this video, my best friend who is 11 has type one diabetes, she enjoys playing netball and she likes to be sporty. I am trying to learn as much as possible so I can help her when she comes back to school!

  15. I got diagnosed at age 7 and now I’m almost 12. I got diagnosed on May 18 2015. Sometimes I break down crying a asking my mom and dad my me, why did I have to be the one who got diabetes. But now I realize I’m not alone and I was never alone. We are all unique in our own way. And I know that every thing is ok and it always will be. I can still follow my dreams.

  16. I was diagnosed just this last month, I hate having Diabetes but i'm learning to cope with it.

  17. I'm type 1 diabetic. And it's actually helped my life for the better and I'm thankful for it. It's also not difficult to take care of it. I was diagnosed in Valentine's day. What was your guys blood level when you were diagnosed. I don't know my exact number but I was over 1000.

  18. I think I have type 1 diabetes but my parents won’t believe me. The only symptoms I have is occasionally peeing and drinking a lot. I did the wee test and nothing showed up. I ate bread and I started drinking and peeing again.

  19. I get diabetes 1 on So much medicine and a shot every day in the stomach they need to bring out a carrier that will get rid of it

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